Saturday, 10 December 2011

When all your hopes and dreams change


It was November 30th 2001 my sons due date when I actually went into labour with him, the labour was only short and I was home the next morning with my baby boy. My daughter was almost 21 months old when her baby brother was born so life was hectic for a while, little did we know how hectic our lives would become. I guess in a way I’ve always known Thomas was not like his sister but it was when he was around 6 months old that he stopped breathing whilst sitting in his pram it appeared like he had chocked on saliva. He was admitted to hospital and discharged a few days later armed with inhalers and instruction to give him it every 4 hours and I will receive an appointment for a follow up, fast forward 6 weeks and his check up came the Dr's was not worried about him having the episode of not breathing but was highly concerned about his muscle tone or rather the lack of it. The penny dropped he confirmed to me what I had been telling the health visitors all along yet been fobbed off with “he will get there “ “boys are slower than girls”. Life then because one hospital appointment after another with blood test, bone age x-rays, more blood test, examinations then can the diagnosis GLOBAL DELAY. Life then was filled with checkups and therapy sessions. 


                                    
            So once I had come to terms with having a child with special need my life slowly became just normal to me because I got use to it I went on to have another daughter who fitted in great but it was like having 2 babies because Thomas was so delayed, then I became a single parent it was hard work the hardest I’ve ever done but was so so rewarding so we just plodded along for a few years then  In 2007 I moved to Wales to be with my husband and the whole hospital appointments started up again because Thomas was not progressing as he should so his school Dr ordered test from what felt like every specialist going, I am so thankful that he did so at the end of 2009 beginning of 2010 Thomas was diagnosed with ADHD to me I think I did the whole denial thing because I always thought the child had to be wild for them to have ADHD and Thomas was not yes he was very hyper but we could control him in a sense. The conversation of the dreaded medication come up which made me feel sick to the pit of my stomach. I told them I didn’t want him not to be him so they came up with Medikinet XL10mg it’s a slow release medication that we give him 1 hour before school so it starts to work for the start of school and will wear off just at the end of school time, the 1st time I picked up the prescription from the chemist was awful because I had to provide identification and the tablets came out of the safe this alone made me not want to let him swallow that tablet but I knew I had to do it for him to be able to concentrate better in school. I am glad I did his school work as come on  loads and he can finally sit and do a little task well sort off we still have the odd day when he refuses to do anything that was not his idea. Since we moved to Wales we have added another 2 children to our ever growing family so life is hectic, I love every second of it.

16 comments:

  1. Just thought I would comment! What a journey you have been on! Glad he is doing well! x

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  2. hi, i found you through the Love all Blogs Special Needs Showcase - it's lovely to meet you! Thomas is a gorgeous boy but I'm sure that he is a challenge at times. I look forward to reading more. Take care

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    1. He sure is a challenge, but I love a good challenge :)

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  3. Glad you joined up with Love all Blogs and good to find you, great that your son is doing well x

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  4. Hi, I've found you through Love All Blogs. Glad to hear your son is going well but I recognise some of what you have been through. My son has ASD and when he was a toddler my concerns about his development were often fobbed off by the visitor due to him being a boy. It took me years of fighting the system to finally get a diagnosis but I'm glad we did because it has helped us to get targeted support for him. anyway nice to have met you via LAB. Deb

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    1. It was the same for me, I was constantly fobbed off by health visitors. I think if he wouldn't of stopped breathing it would of been a while before getting a diagnoses.

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  5. What a lovely post. Thank you for linking up to the BritMums monthly round-up. Medication is such a difficult one but I make peace with myself by saying it gives my little girl a better quality of life. Thanks again xx

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  6. read it in the round up. Such difficult decisions we have to make for our children.

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    1. it is but we have to do it so they have a better quality of life.

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  7. You have written about our family, the only difference is My little man is wild :( when he goes, there is no stopping him, maybe with age he will become more tolerant, well i hope so anyway, nice to 'meet' you xxx

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    1. How old is he? and is he medicated? I think have really strict boundaries help with Thomas, when my mum has him he knows he can get away with more things so will push it to the limit.

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  8. your life sounds just as hectic as mine atm hun,i had the whole he will get there hes a lazy boy,boys are always slower rubbish too drove me mad!

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    1. Life is hectic, it is always hard when you get told that isn't it, people still now don't even realise he is disabled because he looks like any other child just smaller for his age.

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